About 10-15,000 people in the United States
have NMOSD1—and together we can do big things.

We recognize just how important it is to be able to connect with other people with NMOSD. Building a community of support and connection can offer something to turn to when diagnosed with this unpredictable disease.

Changing the future of NMOSD starts here—
and not with you alone, but together.

What is NMOSD?

Neuromyelitis optica spectrum disorder (NMOSD) is an unpredictable autoimmune disease caused by inflammation in the central nervous system (the optic nerve, brain stem, and spinal cord).

Join the

As we move forward, sign up to connect
and learn from the NMOSD community. By signing
up, you’ll also receive emails with:

  • Information and education about managing NMOSD in your daily life
  • Inspiration to empower you to be your own best advocate
  • Personal stories from our community members about their NMOSD journeys
  • Information on clinical trials and research
  • Invitations to virtual and live events so you can meet others and learn about additional NMOSD resources

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Resources for Your Path Forward

The first step to manage your NMOSD is to understand your condition. And the sooner you understand your condition, the sooner you can create a plan with your doctor and start to NMOwn your path forward.

A Primer For Your Path Forward

Get a high-level understanding of this complicated medical condition with this fact sheet.


Know Your NMOSD Symptoms

The many symptoms of NMOSD can vary from person to person, so this checklist can help you connect the dots of yours.


Owning Your Doctor Discussions

Feel prepared and get organized for your doctor appointments with this list of questions and topics to discuss.


Resources provided by NMOSD support foundations can also help you learn more about NMOSD and connect with others like you:

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Reference: 1. Flanagan EP, Cabre P, Weinshenker BG, et al. Epidemiology of aquaporin-4 autoimmunity and neuromyelitis optica spectrum. Ann Neurol. 2016;79:775-783.